Academy Camp!

Adam is having a great time in his "Crafty with Food" camp with Aunt Brelle and Young Chef's Academy!  Yesterday was all, "Guess what?", "You know what?", and "And THEN....." when he was telling me about his day.  Soo many cool ''spearmints" going on and yummy food being made...and eaten!  I love how he explains all the experiments and how he makes the food in the afternoon.  He's pretty detailed!

Eating lunch in the cafeteria is another cool new experience for him. He thinks the cafeteria is really cool.  It's like a "restranaut" with all the people talking and all the choices.   The only problem he has had is that he has been dropping his food - it just slips off his plate.  He was all like "I'm not very good at carrying food on plates."  Thankfully someone had seen it and helped him clean up and get some new food.  Yesterday he said he got a corn dog, 2 pieces of bread - plain, and chocolate milk.  It cracked me up to hear that. He just felt like getting 2 pieces of bread with his dog!  Today he just got chicken nuggets.  Can't wait to hear about tomorrow since he doesn't like hamburgers but maybe if everyone else is eating, he will too.  Seems to work when he cooks in the afternoon.  He told me how when he's done he has to put his plate in one place and the silverware in a slot for the chef to clean.  Ha ha!

After lunch the kids gets free time. They get to choose to go to the pool, the computer lab, or play outside.  He really thought he would want to swim everyday.  He tried it yesterday and said it wasn't as fun as he thought.  Today he was going to go to the computer lab if it rained or outside if it didn't.  Well, it didn't.  I asked him if he had fun since he said the kids yesterday said going outside is the best! Umm...it was "horrible".  What??  Apparently the boys have some kind of ball game they like to play.  Adam said it was like a combo of volleyball and dodge ball.  He didn't want to play that game and got sad that none of the boys wanted to go play on the playground.  He said he stood by the fence and cried.  :(  One of the counselors played UNO with him and then some girls came to play but it was time to go in.  So, tomorrow he's going to see what the computer lab is.

I tried to explain to him that if he is only one out of a group that they aren't going to all stop what they are doing if they are all enjoying the game.  I also said that he could play with the girls. They like to swing, play tag, and play hide-and-go-seek.  I think he just gets so used to finding at least one boy at the parks that he was surprised when none of the boys wanted to play with him. It was soo sad tonight at bed time because he said everybody ignores him.  I think it's more that if he doesn't get his way, he thinks he's being ignored but it still breaks my heart to hear that

Team meeting

Adam's speech teacher was commenting on the number of colds he has gotten in the past year.  She said since he is mostly a mouth breather, the air doesn't get filtered through the nose and that could be a reason why.  She mentioned a friend of hers whose daughter has Down's (another syndrome known for their enlarged tongues) who went in for a sleep study and found out she stopped breathing A LOT of times at night .  She had her tonsils and adenoids removed and is doing much better.  She tried to look in Adam's mouth to see if maybe that was causing him to keep his mouth open (other than his congested nose) but she couldn't get a good look.  She said it might be worth checking with his doctor.  That's when I realized that Adam has not been back to Sr. Louis for a check-up in a while.  I thought it might be good before he gets into school full-time to see what the cranio-facial team has to say so I contacted them today to see if they had any dates still available this summer.  The only date left was August 9th.  (Happy birthday to me!)  The meeting takes 3-4 hours for all the specialists to cycle through.  It will be nice to talk to people who are familiar with hemi/BWS!  I hope Adam cooperates.  I think he did fairly well the first time (he was almost 2) but it's hard to remember.  I guess as long as he has the iPad and his DS he'll be OK. Here's all the members of the team....

•  Audiology

• Genetic Counseling

• Neurosurgery

• Orthodontics

• Pediatric Dentistry

• Pediatric Nursing

• Pediatric Ophthalmology

• Pediatric Otolaryngology

• Pediatric Psychology

• Plastic Surgery

• Speech/Language Pathology

• Social Work.

Beach part 2

Wednesday we spent several hours playing at the beach. It was such a nice day!!  Later on we explored the pier where some kid had just caught a shark!  He said it was about the 14th one he had caught this trip. Adam got to touch it (and the guy even offered to let him hold it - yikes!) before he threw it back in. Thankfully it swam away.  After that we headed over to Haley's ice cream shop.  The kid working there gave Adam a HUGE scoop of sherbet.  Dave got to talking to the kids there about music so I asked Adam if he wanted to sit outside and look at the ocean as we ate.  As soon as we walked outside our ice cream started dripping too fast to eat so we ran back in.  Ha ha!  We got back to the house in time for Adam to take a quick evening swim before it got too dark.

Thursday was really warm so we decided to go to Planet Fun!  We started off with mini golf.  Adam was so excited until he saw the room was dark. (It had black lights and fluorescent paint to look "cool" and underwaterish).  He literally went running and screaming out of the building. The place was empty so the nice lady working turned the lights on for us.  After our 9 holes of golf and not keeping score, we moved on to bowling.  Adam got bumpers.  We did not.  I won!  (Adam was not far behind).  Then we loaded up a card for the arcade.  Adam LOVES winning tickets (which were paperless and went on the card here - kind of cool) and trading them in for candy! 
Later, when it was cooler, the guys went swimming while I enjoyed the beach.

Friday we packed some lunch and headed to Southport to go the Fort Fisher aquarium.  We ate lunch on the ferry.  The aquarium was a little crowded since it is so small and a school group was there.  Adam was interested in the beginning stuff but once we went inside where it got dark and crowded, he just kind of walked by everything.  We found a playground and snacks on the way out which he liked but it was time to go catch the ferry.  And of course as we were leaving, so was the school group.  We stopped at Patronies on the way home for some carry-out.  YUMMY meatball sub and calszone! Then we all went swimming.  The water was perfect temp and great waves!  Great end to a great week!